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#agedcare

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An #Elderly #Blind #Dementia-inflicted person needed interviews for their bookclub book downloaded onto a thumb drive and played in a long shuffled loop on their older Smart TV.

Their assistant used yt-dlp, a command line / console program to download Youtube videos of interviews/reviews and, in a Firefox browser, used the extension called Video Download Helper to download radio interviews/reviews.

The sooner an old person is institutionalised the better they'll adapt, according to some seeking to justify putting an elderly person into #AgedCare.

While there is something behind that, for some strange reason the proponents don't want themselves to be put into an institution immediately.

Appears that being optimally adapted to being institutionalised is not something they're choosing for themselves?

While weighting it heavily for another?

Continued thread

Thank you to all contributors.

The combined knowlege shown by Mastodon folk is impressive.

And it was wonderfully re-assuring and empowering walking into the facility with a distillation of questions coming from so many people's experiences, on paper, in my pocket.

I've made a list of +50 questions from what's been posted and some extras.

Will be posted here once grouped into topics.
DM me if you need the questions immediately.

#AgedCare
#AgedCareDecisions #AgedCareQuestions

#AustraliaVotes #AgedCare

Thank you to those who helped keep the Liberal Party out of power.

When last in power they followed the wishes of the aged care industry group and so the government's own aged care quality regulator had to treat each aged care facility as a separate entity and not discipline/educate go to the company that owned multiple facilities.

Industry group is AIUI still active today. It was not them that pushed the government into having the Royal Commission into Aged Care.

The lives of unpaid carers are exhausting & their work deserves Huge respect. Watching a loved one decline like this is endless grief.

But….

The tone of this piece & others like it is another version of the myth of the ‘good woman’ (even tho some carers are men) - the idea that the ‘right’ way to think about dementia is that the person suffering is a paragon & the adoring carer will sacrifice their own health & well being for as long as it takes.

I wonder whose voices are silenced by this.

What about the people who are bound by circumstance caring for someone who for years has been their abuser? People entrapped in a relationship of coercive control learn they cannot trust their own feelings or judgment, that their worth lies only in serving their abuser & that they are not entitled to be safe. The idea of standing up to a partner who does not want to go into care is unthinkable. Facing their anger is too frightening.

The framing used in pieces like this is another rope binding such people into their learned certainty that ‘if I wasn’t such a failure as a person I could do this’. Looking from this place, for some the only escape that feels possible is their own death.

For all the respect I offer to carers like those in this article, it is the experience of people whose voices are made inadmissible by the framing used here, that breaks my heart 💔

#AgedCare #Dementia #CoerciveControl

‘I could never, ever not care for her’: how do carers know when to stop caring for those they love? theguardian.com/society/2025/m

The Guardian · ‘I could never, ever not care for her’: how do carers know when to stop caring for those they love?By Susan Chenery
Continued thread

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#AustralianValues

Back to Option C. "no one wanting to visit them".

Folk sought to increase communication between Fam&Friends and Aged Care residents.
Made an app.
Technically a success.
But it appeared to them that Fam&Friends actually didn't want to communicate with the elderly person in care.

Am asking, "In purely selfish things, what do you get for you out of interacting with geriatric / frail / senile / institutionalised aged folk?"

Anything at all?

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#Australia
Looking at #AustralianValues.

In the light of #AgedCare both commercialised and #AgingInPlace.

Claim is that some 50% of institutionalised aged care recipients don't get even one visitor a year.

It's been pointed out that many of these folk will have made choices that; A. had them lacking a support community, B. had them with no friends/family who they wanted to visit them, and/or, C. have no one wanting to visit them.

Their choices form part of Australia's values.

1/?
#Australia's #RoboDebt was the product of a broken system.

Both LNP and #Labor governments have used the welfare system to victimise the unemployed.

And that system has repeatedly operated illegally.

Individual publc servants, the public service union, departments, ombudsmen, commissioners, individual politicians, political parties, the parliament, the whole damned government have failed.

Cf #AgedCare #InstitutionalisedChildAbuse

The latest. Note the deaths.

theguardian.com/australia-news

The Guardian · Australia’s mutual obligation system is broken. Can apologies and reviews save it from suspension?By Cait Kelly

#Australia's pre-Albanese #AgedCareSystem was brutal.

Same companies and mostly the same administators are running the current system.

They were OK enough with how it was working brutally.
Why would a leopard stop eating faces?

Observation:
Complaints, not the reason for the complaint, were treated as something to be managed away ASAP.

Suggest anyone with a dear one in #AgedCare take a notebook and biro with when visiting.
See a problem?

Write down:
What
When
Where
Who

Then report to gov.

#Dementia #LateStageDementia
Just reading up.

"Because an individual with dementia is unable to understand the benefits of feeding tubes or IV drips, they will often be incredibly distressed and attempt to remove them, causing added pain and risk of infection." crossroadshospice.com

Reading this I'm feeling that "feeding tubes or IV drips" are (unless the patient has directed otherwise previously) unreasonable steps to continue life, steps likely to cause pain and suffering.
#AgedCare

I've heard stories about the effects of bullying and harassment of children on #SocialMedia over the years.

From teachers. Heard of another tragedy last night.

And it appears that the negative outcomes of social media are well known.

And for some 20 years Australian federal and state governments did nothing to collect data about the harms done to Australian children and the lives lost through social media.

Parallels the acceptance of abuse and neglect in Australia's #AgedCare system.

Enough rope

May sooner or later be going to aged care facilities to see how their #Dementia care stacks up.

Just seen the latest Ausrralian aged care facilities Covid infection and death figures.

Care to suggest an innocent sounding question about infection control that would give a facility every opportunity to explain their best practice approach around masking, mask types, indoor air quality, testing types and freq., work culture around "feeling under the weather" and sick pay?
#AgedCare