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Maggie Maybe<p>Yep, this person has an additional issue of not having a doctor here, but when all the naltrexone powder is gone at the pharmacy I am screwed. </p><p>Sure they can get 50 mg tablets and compound them into my tiny 0.5 mg dose (medicare even paid for them that way) but it doesn’t work as well. Maybe I’m just extra sensitive to medication but they didn’t feel evenly dosed that way.</p><p>Tariffs just cut off my access to the medications I need to survive : r/cfs <a href="https://www.reddit.com/r/cfs/comments/1n1ftyi/tariffs_just_cut_off_my_access_to_the_medications/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">reddit.com/r/cfs/comments/1n1f</span><span class="invisible">tyi/tariffs_just_cut_off_my_access_to_the_medications/</span></a> </p><p><a href="https://zeroes.ca/tags/tariffs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>tariffs</span></a> <a href="https://zeroes.ca/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> <a href="https://zeroes.ca/tags/reddit" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>reddit</span></a></p>
hauch<p>Wie es aussieht, brauche ich das mit der Off-Lable Kostenübernahme für Pyridostigmin gar nicht zu versuchen, bis ich eine ME/CFS Diagnose habe, aber immerhin bekomme ich wahrscheinlich bald Low Dose Naltrexon und kann das auch mal ausprobieren.</p><p>Eigentlich wollte ich erst mal die Autismusdiagnostik hinter mich bringen, bevor ich irgendwas anderes mache, aber wahrscheinlich werde ich bald mal schauen, ob ich einen Termin bei einem Arzt in Köln bekomme.</p><p><a href="https://nrw.social/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> <a href="https://nrw.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> <a href="https://nrw.social/tags/Naltrexon" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Naltrexon</span></a> <a href="https://nrw.social/tags/Pyridostigmin" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Pyridostigmin</span></a></p>
Frieke<p>Volgende week evaluatie met de arts en dan beslissen of ik LDA ga proberen of weer <a href="https://mastodon.social/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> opstart.</p><p>Iemand ervaring met Low Dose Aripiprazol <a href="https://mastodon.social/tags/LDA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDA</span></a>?<br> Of een ander medicijn dat werkt tegen de uitputting en post exertionele malaise.<br>Tips/info welkom.</p><p><a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Frieke<p>Stukje over Low Dose Naltrexon (<a href="https://mastodon.social/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a>)<br>Met illustraties van Beeldpraat</p><p>My <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> life. <a href="https://mastodon.social/tags/NietHersteld" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NietHersteld</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Maggie Maybe<p>Yep <a href="https://zeroes.ca/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> is a MIRACLE for my stupid early waking <a href="https://zeroes.ca/tags/insomnia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>insomnia</span></a> from <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a></p><p>(I’ve always taken it in the morning so maybe if I took it at night like the Internet says I’m supposed to it wouldn’t work this way, but damn. This stuff is fantastic when it’s fresh!)</p><p>If anyone is reading this who could possibly explain why this stuff doesn’t work for a full 90 days if I buy a bottle of 90 capsules I would be so fascinated to learn because the pharmacy humors me but I’m not sure they believe me because they don’t have any explanation why the tub of powder can sit on their shelf but as soon as they make it into capsules the clock starts.</p><p>I slept until 6:15 today. I probably should have stayed asleep longer but my little cat wanted attention.</p>
Maggie Maybe<p>Can people please stop saying “hahaha well nobody needs that trash from china anyway” in response to <a href="https://zeroes.ca/tags/tariffs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>tariffs</span></a>?</p><p>Just because you don’t need anything, or just because you think the only people who spend money in this country spend it on Trash, doesn’t mean that the only thing we get from China is trash that nobody needs. </p><p>I drive a Volvo that is owned by a Chinese company. I need my car because we don’t have public transportation here. I’m a disabled poor person who can’t actually spend 500 times more on car parts if I need them. </p><p>But not even that, the only medication that helps with my chronic illness comes directly from China because the US refuses to produce it because they can’t make record profits from it. </p><p>And these are just two examples from one person who barely has money to spend anyway. </p><p>Please take a moment to think outside of your household and your ZIP Code and your judgments. I’m starting to take it personally this morning when I’m seeing ha ha this is a good thing people can’t get stuff from China.</p><p>My life matters. I deserve to be able to get out of bed, prepare food, clean my apartment, shower sometimes, and go outside once in awhile. I need <a href="https://zeroes.ca/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> or I will go back to being bedbound. </p><p><a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> <a href="https://zeroes.ca/tags/tariffs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>tariffs</span></a> <a href="https://zeroes.ca/tags/china" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>china</span></a></p>
Maggie Maybe<p>This makes me so sad. This is from the Covid long hauler Reddit sub, and this makes me so sad.</p><p>I’ve taken breaks from taking LDN (for <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> from mono) when I have had to take lots of opioid pain medication and I don’t want to deal with interactions. So far it has never set me back except for on the days I don’t take it.</p><p>The compounding pharmacies have been buying the <a href="https://zeroes.ca/tags/naltrexone" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>naltrexone</span></a> powder from <a href="https://zeroes.ca/tags/China" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>China</span></a> since at least the 80s. If they can’t get it, we can’t get LDN.</p><p>And I can’t take the medication this person is taking, <a href="https://zeroes.ca/tags/Wellbutrin" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Wellbutrin</span></a> makes me feel like I’m going to crawl out of my skin, and if I take more than 0.5 mg naltrexone I will give myself opioid withdrawals because I take pain medication from pain management. </p><p><a href="https://zeroes.ca/tags/FML" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>FML</span></a> is right. This is the only medication I have ever taken that actually helps my chronic ill illness. Adderall can help me push through if I have to do something I can’t do, but I wouldn’t call that exactly helpful. </p><p><a href="https://zeroes.ca/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> is the only treatment I have found for MECFS that helps me and I think we’re all going to run into problems pretty quickly.</p><p><a href="https://zeroes.ca/tags/reddit" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>reddit</span></a> <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a></p>
Maggie Maybe<p>So I woke up this morning to find out that the next time I need to order some <a href="https://zeroes.ca/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a>, because it’s literally the only treatment I have for <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a>, there will be a 104% tariff on it.</p><p>I’m really angry about it, I’m just so so glad that I didn’t get this from covid I caught at work. I’m not sure that I could go on if I destroyed my health participating in capitalism only to have that same system decide that I shouldn’t be able to get out of bed if I can’t afford a 104% Trump tax.</p>
Frieke<p>LongCovid polikliniek vervolg. Na POTS behandeling van afgelopen 4 weken die aanslaat, gaan we nu een poging doen de PEM een kopje kleiner te maken. Volgende paardenmiddel... <a href="https://mastodon.social/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> <br>Heb al meer lotgenoten hiermee bezig gezien met wisselend succes. Vind vooral het aspect bijwerking op dromen/slaap een spannende aangezien dat niet al te best is. 🤞🏼</p><p>Blijk trouwens niet de enige die accuut crasht van klasse3 steunpanty 🫣 Die gaat ff in de kast.<br>My <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> life</p>
Robot Diver<p>I cannot preach the wonders of low dose naltrexone enough. I asked to have it prescribed after i was diagnosed with mecfs and it does help a little, but where it really helps is with PTSD and i wish people were screaming that from the mountain tops. </p><p>I have chronic CPTSD and before I started taking it I hadn't had a restful night's sleep since i was in my early teens. LDN was night and day in terms of difference. It took a couple of weeks to kick in but when i did, my sleep was transformative. </p><p>I went from my usual bare wires on waking to feeling like i'd actually had some restorative sleep and that hasn't gone away as long as I've kept taking it. </p><p>It has minimal side effects and very few, if any, counter-indications and I honestly don't know why this isn't the first thing they do with someone who has a ptsd diagnosis. It could save lives. </p><p><a href="https://starlite.rodeo/tags/ptsd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ptsd</span></a> <a href="https://starlite.rodeo/tags/lowDoseNaltrexone" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lowDoseNaltrexone</span></a> <a href="https://starlite.rodeo/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a> <a href="https://starlite.rodeo/tags/longCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>longCovid</span></a> <a href="https://starlite.rodeo/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> <a href="https://starlite.rodeo/tags/CPTSD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CPTSD</span></a></p>
Tom Kindlon<p>ME Research UK:</p><p>TRPM3 is an ion channel that is crucial for many physiological processes. A review <a href="https://bit.ly/3N7gdkS" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">bit.ly/3N7gdkS</span><span class="invisible"></span></a> explores TRPM3 dysfunction in ME/CFS and the potential clinical benefits of the drug - low-dose naltrexone (LDN). Read more:<br><a href="https://bit.ly/trpm3mecfs" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">bit.ly/trpm3mecfs</span><span class="invisible"></span></a></p><p>Hashtags:<br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <br><a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid19</span></a><br><a href="https://disabled.social/tags/CovidBrain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CovidBrain</span></a> <a href="https://disabled.social/tags/ldn" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ldn</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a></p>
Maggie Maybe<p>This substack was recommended to me today and I LOVE IT.</p><p>The Medicine Cabinet: Low-Dose Naltrexone for Long COVID<br>With Printable Reference Sheet</p><p><a href="https://longcovidmd.substack.com/p/the-medicine-cabinet-low-dose-naltrexone" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">longcovidmd.substack.com/p/the</span><span class="invisible">-medicine-cabinet-low-dose-naltrexone</span></a> </p><p><a href="https://zeroes.ca/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a></p>
rob 📸Moorgate <a href="https://pixelfed.social/discover/tags/photography?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#photography</a> <a href="https://pixelfed.social/discover/tags/streetphotography?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#streetphotography</a> <a href="https://pixelfed.social/discover/tags/moorgate?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#moorgate</a> <a href="https://pixelfed.social/discover/tags/london?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#london</a> <a href="https://pixelfed.social/discover/tags/ldn?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#ldn</a> <a href="https://pixelfed.social/discover/tags/cityoflondon?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#cityoflondon</a> <a href="https://pixelfed.social/discover/tags/street?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#street</a> <a href="https://pixelfed.social/discover/tags/signage?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#signage</a> <a href="https://pixelfed.social/discover/tags/blackandwhite?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#blackandwhite</a> <a href="https://pixelfed.social/discover/tags/blackandwhitephoto?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#blackandwhitephoto</a> <a href="https://pixelfed.social/discover/tags/bwphoto?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#bwphoto</a> <a href="https://pixelfed.social/discover/tags/bwphotography?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#bwphotography</a> <a href="https://pixelfed.social/discover/tags/bnw?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#bnw</a> <a href="https://pixelfed.social/discover/tags/bnwphoto?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#bnwphoto</a> <a href="https://pixelfed.social/discover/tags/bnwphotography?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#bnwphotography</a> <a href="https://pixelfed.social/discover/tags/monochrome?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#monochrome</a> <a href="https://pixelfed.social/discover/tags/canon50mm?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#canon50mm</a> <a href="https://pixelfed.social/discover/tags/canon50mm14?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#canon50mm14</a>
Lukas Schieren :firstaid:<p>Klare Hörempfehlung: Der "Lage der Nation"-Podcast (<span class="h-card" translate="no"><a href="https://chaos.social/@lagedernation" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>lagedernation</span></a></span>) von und mit Ulf Buermeyer (<span class="h-card" translate="no"><a href="https://chaos.social/@vieuxrenard" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>vieuxrenard</span></a></span>) und Philip Banse (<span class="h-card" translate="no"><a href="https://chaos.social/@Philip" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>Philip</span></a></span>)! </p><p>🌐 <a href="https://lagedernation.org/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">lagedernation.org/</span><span class="invisible"></span></a></p><p>:rss: <a href="https://feeds.lagedernation.org/feeds/ldn-mp3.xml" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">feeds.lagedernation.org/feeds/</span><span class="invisible">ldn-mp3.xml</span></a></p><p>➕ <a href="https://plus.lagedernation.org/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">plus.lagedernation.org/</span><span class="invisible"></span></a></p><p><a href="https://social.lukas-schieren.de/tags/podcast" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>podcast</span></a> <a href="https://social.lukas-schieren.de/tags/rss" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rss</span></a> <a href="https://social.lukas-schieren.de/tags/LageDerNation" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LageDerNation</span></a> <a href="https://social.lukas-schieren.de/tags/LdN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LdN</span></a></p>
Tom Kindlon<p>Upcoming 16-week <a href="https://disabled.social/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> trial in Canada led by Luis Nacul:</p><p>Low-dose naltrexone for post-COVID fatigue syndrome: a study protocol for a double-blind, randomised trial in British Columbia</p><p>Free full text:<br><a href="https://bmjopen.bmj.com/content/14/5/e085272" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">bmjopen.bmj.com/content/14/5/e</span><span class="invisible">085272</span></a></p><p>Hashtags:<br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/CovidBrain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CovidBrain</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>Low Dose Naltrexone for the Treatment of <a href="https://disabled.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCOVID</span></a> (February 19)</p><p><a href="https://www.youtube.com/watch?v=Tco6wHEOnE4" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=Tco6wHEOnE</span><span class="invisible">4</span></a></p><p>19-minute video from Jarred Younger PhD</p><p><a href="https://disabled.social/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PASC</span></a></p>
Tom Kindlon<p>Looks like this is Australia-wide as no need to travel to a research site</p><p>NCNED is starting a <a href="https://disabled.social/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> Clinical Trial for <a href="https://disabled.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCOVID</span></a> patients soon.</p><p>If interested in participating call (07) 56789283 or email ncned@griffith.edu.au</p><p>From:<br><a href="https://www.facebook.com/NCNED/posts/pfbid0iwCas7HZBzrHRT6Ce4PQhz3mUHAz67ScKuCrt8BjLgcGY4A79XE6KuTHegJqLyY2l" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">facebook.com/NCNED/posts/pfbid</span><span class="invisible">0iwCas7HZBzrHRT6Ce4PQhz3mUHAz67ScKuCrt8BjLgcGY4A79XE6KuTHegJqLyY2l</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PASC</span></a> </p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/covid19" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>covid19</span></a></span> <a href="https://disabled.social/tags/Coronavirus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Coronavirus</span></a><br><a href="https://disabled.social/tags/COVID%E3%83%BC19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>COVIDー19</span></a> <a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>COVID19</span></a> <a href="https://disabled.social/tags/COVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>COVID</span></a> <a href="https://disabled.social/tags/COVID_19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>COVID_19</span></a> <a href="https://disabled.social/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SARSCoV2</span></a> <a href="https://disabled.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>COVIDBrain</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/auscovid19" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>auscovid19</span></a></span></p>
Tom Kindlon<p>New US open-label study<br>Low-dose naltrexone and NAD+ for the treatment of patients with persistent fatigue symptoms after <a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>COVID19</span></a></p><p>Free fulltext:<br><a href="https://www.sciencedirect.com/science/article/pii/S2666354624000115" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">sciencedirect.com/science/arti</span><span class="invisible">cle/pii/S2666354624000115</span></a></p><p><a href="https://disabled.social/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PASC</span></a></p>
Maggie Maybe<p>Does anyone here do byphasic sleep? Or polyphasic sleep on purpose or naturally?<br>One of the worst symptoms of <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> for me is waking up in the middle of the night, unable to go back to sleep. <a href="https://zeroes.ca/tags/LDN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LDN</span></a> fixed it, but it comes back right before my cycle starts, and I swear it takes almost the whole month to get back to normal and then it starts again.</p><p>Last night after watching a couple videos, and after extensive conversations with a friend in Greece who lives in a country where they shut everything down midday (for heat more than naps, but whatever) I decided that since I don’t work I don’t need to keep trying to force eight hours of solid sleep on myself.</p><p>So when I woke up at 2 AM last night I got up for a couple hours and I did some stuff, and then I slept from four until seven. And I actually feel pretty good.</p>
Thorsten Munk🇪🇺🇺🇦🇵🇸🇮🇱<p><span class="h-card" translate="no"><a href="https://troet.cafe/@essmueller" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>essmueller</span></a></span> <span class="h-card" translate="no"><a href="https://chaos.social/@lagedernation" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>lagedernation</span></a></span></p><p>Sehr wichtiger Hinweis in der <a href="https://digitalcourage.social/tags/LdN" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LdN</span></a> auf Marcel <a href="https://digitalcourage.social/tags/Fratzscher" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Fratzscher</span></a> (<a href="https://digitalcourage.social/tags/DIW" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DIW</span></a> Berlin) zu einer Möglichkeit das Haushaltsloch zu stopfen (Link siehe Beitrag oben). Wäre nicht mal Steuererhöhung, sondern nur Rücknahme einer Steuererleichterung für Spitzenverdiener (Inflationsausgleichgesetz). Bringt 14 Mrd. € statt 3 Mrd. € Kürzung beim Bürgergeld, die zudem moralisch und verfassungsrechtlich (Existenzminimum) bedenklich wäre. </p><p>Ulf von der LdN kritisiert auch den Diskurs und Presse, dass dem Spin gefolgt wird und primär über soziale Kürzungen diskutiert wird. Auch ein wichtiger Punkt da die öffentliche Diskussion in Talkshows und Zeitung auch den Fokus setzt.</p>