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#NEISvoid

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Well, not the happiest intro but I’ll cut/paste this here while I still remember then add a proper intro spoons allowing..⬇️

Please #boost and share to other platforms spoons allowing.

Seems I’m desperate enough to go to the media for help. Yes, the trapped woman in the article below is me.

My story: thecanary.co/global/world-anal

More info on how to help:: buymeacoffee.com/halcionandon/
Beem: Halcionandon

I’ve tried every level of government and they simply won’t help.
- Please ask people if they have a spare room or somewhere to go. Maybe you have somewhere?
- Is anybody a #DisabilityAdvocate? #SocialWorker? Need help.

Please don’t give me contacts for domestic violence orgs. They don’t help disabled people with housing & only offer counselling. Also, that list of disability advocates going around for #Melbourne #Australia (where I am) is outdated - there aren’t any in my catchment. So I’m looking for volunteers with some background.

Thanks for reading

#PwME #LongCovid #MECFS #Hypothyroidism #ChronicIllness #Neisvoid #NacissisticAbuse ##Housing #Dysautonomia #SocialWork #MedMastodon #PWLC #MutualAid
#HumanRights #Press

@mecfs @chronicillness @neisvoid
@disability @disabilityjustice @socialwork @mutualaid
@chronicillness

Canary · Australia's state and services are trapping a woman living with severe ME/CFS in domestic abuseWoman living with severe ME/CFS in Australia trapped in a cycle of violence from domestic abusers to the punitive state & medical services.

Oh, summer energy level, I love you! #NEISvoid

I actually managed a short road-trip yesterday with a few thousand steps of sightseeing, and still had enough energy today to do a fair amount of tidying and small projects around the house. Hooray for feeling a sense of accomplishment and having removed several small metaphorical pebbles from my shoes!

🧵
Medscape (widely read by health professionals):

‘Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms

medscape.com/viewarticle/sympt
(may require free registration)

Thought this was good & interesting.

@chronicillness
@spoonies
#lupus @lupus #neisvoid
#chronicillness #hiddenillness #invisibleillness #ChronicIllnesses
#Spoonies #ChronicallyIll
#POTS @pots #IBS @ibs fibromyalgia@a.gup.pe
#Fibromyalgia #Fibro #FMS @longcovid #LongCovid @mecfs #MEcfs
1/

"One Red Leaf at a Time: an international art project"

theredtreeandme.substack.com/p

"The Red Leaf Creative Collaborative is excited to launch One Red Leaf at a Time: an international art project."

To contribute a creative expression on the theme of ‘One Red Leaf at a Time’ please register your interest at this link:
bit.ly/OneRedLeafArt

If you don't have a google account then send email to jo@theredtreeandme.com

@mecfs

#MEcfs#PwME#POTS

Is anybody able to recommend a good, free app to go with a heart rate monitor for android?

One that pairs with an actual device, not one that uses my phone's camera.

I expected this one to come with an app, but it didn't, and every other app I can find is only willing to give me a few days free trial before charging me way too much.

Preferably not an exercise focused app, too. I'm not exercising, I'm just trying to be alive.

EDIT:

Nevermind. I'm returning the monitor.

EDIT 2:

Just in case anybody stumbles across this and would also like to know, I got pointed toward GadgetBridge, an app downloaded through f-droid, which helps access a lot of the functionality of smart devices without the need to sign up to a paid or data-harvesting service.

Check that for compatible devices, and from there, it is relatively simple to pair the device ^_^