From Jaime Seltzer on the blue site:

Learned earlier this evening that the #MECFS Collaborative Research Center at Columbia's funding was restored... it's a huge relief to know that their work will move forward. Congrats to the whole lab!

#NEISvoid @mecfs

Well, not the happiest intro but I’ll cut/paste this here while I still remember then add a proper intro spoons allowing..

Please #boost and share to other platforms spoons allowing.

Seems I’m desperate enough to go to the media for help. Yes, the trapped woman in the article below is me.

My story: https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

More info on how to help:: https://buymeacoffee.com/halcionandon/
Beem: Halcionandon

I’ve tried every level of government and they simply won’t help.
- Please ask people if they have a spare room or somewhere to go. Maybe you have somewhere?
- Is anybody a #DisabilityAdvocate? #SocialWorker? Need help.

Please don’t give me contacts for domestic violence orgs. They don’t help disabled people with housing & only offer counselling. Also, that list of disability advocates going around for #Melbourne #Australia (where I am) is outdated - there aren’t any in my catchment. So I’m looking for volunteers with some background.

Thanks for reading

#PwME #LongCovid #MECFS #Hypothyroidism #ChronicIllness #Neisvoid #NacissisticAbuse ##Housing #Dysautonomia #SocialWork #MedMastodon #PWLC #MutualAid
#HumanRights #Press

@mecfs @chronicillness @neisvoid
@disability @disabilityjustice @socialwork @mutualaid
@chronicillness

Nobody tells you how quickly being in pain gets boring. Like oh, excruciating pain again? We did that yesterday, could you come up with something different? I’ve got plans.
#NEISvoid #ChronicPain

Me every month: oh cool, I think this month my sciatica isn’t as bad, maybe the birth control is finally helping.
Also me every month the next day: FUCK, never mind!
#NEISvoid #ChronicPain

Oh, summer energy level, I love you! #NEISvoid

I actually managed a short road-trip yesterday with a few thousand steps of sightseeing, and still had enough energy today to do a fair amount of tidying and small projects around the house. Hooray for feeling a sense of accomplishment and having removed several small metaphorical pebbles from my shoes!

A protest guide from #MEAction for folks with ME/CFS, Long Covid, and other chronic illnesses that cause limited energy:

https://www.meactions.org/_files/ugd/b5886a_67f8935af3594508b1a7bcd86e6b7c58.pdf

"We hope this guide can help activism become more intersectional and enable those attending events to do so as safely as possible."

@mecfs @longcovid

This week’s game is apparently “how many of my chronic issues can flare up simultaneously?”
0/10, lots of notes.
#NEISvoid #ChronicIllness #ChronicPain