As a first post I would like to not highlight my own research, but the research of my colleagues, since I really love the way how this research began: With a question many people have asked.
As our working group researches on topics on #anonymization and #deidentification of medical and health data, the risk of identifying people or their membership in certain groups (e.g. having a specific diagnosis) is always present. On one of our retreats they decided to research the question:
Who are those adversaries, trying to do re-identify people in health data sets, what are their motives and what could be the harm?
The results can be found in the #OpenAccess paper: Health Data Re-Identification: Assessing Adversaries and Potential Harms
Digital transformation means that people, who know little about technology, use technology to spy on other people, who know little about technology.
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#privacy #DataProtection #BigTech #SurveillanceCapitalism
The UK's data protection regulator is consulting on
> privacy-preserving advertising to users who have not given consent
Coincidentally, I am consulting on "how to block privacy-preserving advertising".
This 6' 2009 #WebScience conference speech (!) is still rather relevant... Just published on my #Peertube channel! #GDPR #PbD #surveillance #minimisation #DataProtection #profiling #Trump #discrimination #PET #PIR #cloud #MPC #ads Robust #privacy protection for the future #Web p.lu/w/qxSyUuMDSk...
This 6' 2009 #WebScience conference speech (!) is still rather relevant... Just published on my #Peertube channel! #GDPR #PbD #surveillance #minimisation #DataProtection #profiling #Trump #discrimination #PET #PIR #cloud #MPC #ads
Robust #privacy protection for the future #Web https://p.lu/w/qxSyUuMDSkmu6QZktCQcoN
@netzpolitik_feed Gilt für #Frontex keine DSGVO , wenn es sich um Bürger der EU handelt? Wie kann es sein, dass diese #datensammelwut durchgeführt werden kann? Gibt es keine aufschivht
#EU #DataProtection #refugees #dsgvo
If you know anyone in the European Union who is seriously considering buying Meta's spyglasses, please remind them that using those privacy nightmares would make them a controller according to the GDPR. They'd be responsible for ensuring full compliance with our privacy laws, which - surprise, surprise - will be impossible.
Please tell them to save themselves and everyone around them the trouble and give the money to any NGO instead.
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#privacy #DataProtection #GDPR #Meta #BanRayBan
It's up to us if we want targeted advertising or not. It's about consent.
Meta's attempt to gaslight us in the hope we'll get tired or confused is another tactic to uphold an advertising model that isn't operating lawfully.
Tell Meta #StopStalkerAds (UK residents)
Meta must change how it does business away from profiteering on the back of our personal data.
Instead, our report suggests other advertising models that can respect our rights, like contextual advertising or subscriptions for advertisers.
You have a legal right to object to your personal data being used for the purpose of targeted advertising.
Meta even admitted they must respect this right when they settled Tanya O’Carroll's case against them.
So why gaslight the rest of us?
Meta profits by using your personal data for advertising.
By crunching your data into profiles, you become a target for advertisers and a cash cow for Meta.
Their latest attempt to claim to have honoured people's opt out request while ignoring the actual issue is shady stuff.
Don't you know that you're toxic... Meta goes from ghosting to gaslighting.
After our direct action last week, Meta is now replying to 10k requests to opt out of Stalker Ads.
And it's a fudge... they talk about not using personal data for some direct marketing. But don't mention targeted ads!
I'm not the right partner for you if you're looking for someone to write your privacy notice and be done with it.
I'm a perfect partner for you if you're willing to build a privacy-minded company that sincerely values its customers and their rights.
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#privacy #DataProtection #GDPR #business #consulting
Whenever you're building new tech, please seek privacy advice right from the start. Not as a last step before deployment.
Privacy people want to make your tech better! For you, your customers, and everybody else. But they can only do so if you make them part of your project, not just some final to-do on your checklist.
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#privacy #DataProtection #GDPR #tech
"For context, last week Facebook began showing users a prompt asking them to opt into "cloud processing," TechCrunch reported. Should you consent, this allows Facebook to grab stuff from your camera roll and upload it to Facebook's servers "on a regular basis" so it can generate recaps and "AI restylings" of your photos.
The important detail is that by opting in, Meta is asking you to agree to its AI terms, which state that, "once shared, you agree that Meta will analyze those images, including facial features, using AI." Meta would also gain the right to "retain and use" the information shared with its AI systems.
Your alarm bells should already be ringing. Any data that gets fed into an AI system runs the risk of being coughed up or reproduced in some shape or form. And asking for access to your entire camera roll so Meta's tech can "analyze" your photos is a huge and invasive escalation — it's shameless that Meta's even asking. Apparently, already using everyone's billions of Facebook and Instagram posts made since 2007 wasn't enough for Zuckerberg's tech juggernaut.
Moreover, Meta's AI terms don't make it clear if your unpublished camera roll photos it uses for "cloud processing" are safe from AI training. That's in stark contrast with the terms outlined for apps like Google Photos, the Verge noted, which explicitly state that your personal info won't be used as training data."
https://futurism.com/meta-sketchy-training-ai-private-photos
A reminder that Meta - the company that comes up with new and "innovative" privacy violations on a weekly basis - is still certified under the EU-US Data Privacy Framework.
The current system doesn't work!
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#privacy #DataProtection #GDPR #BigTech #SurveillanceCapitalism #Meta
"The court disregarded the privacy rights of millions of ChatGPT users without any reasonable basis to believe it would yield evidence. The court granted the order based on unsupported assertions that users who delete their data are probably copyright infringers looking to “cover their tracks.” This is simply false, and it sets a dangerous precedent for cases against generative AI developers and other companies that have vast stores of user information. Unless courts limit orders to information that is actually relevant and useful, they will needlessly violate the privacy rights of millions of users.
OpenAI is challenging this order. EFF urges the court to lift the order and correct its mistakes."
https://www.eff.org/deeplinks/2025/06/copyright-cases-should-not-threaten-chatbot-users-privacy
Hey Meta, don't leave us on read
Over 10k people have said no to Stalker Ads, so get them off our feed!
This week ORG joined Good Law Project outside Meta's offices in a joint action with People vs Big Tech and Eko to ask why they've done nothing
You have a legal right to say no to Stalker Ads on Meta
Use our tool to opt out (UK residents) https://action.openrightsgroup.org/meta-opt-out
"We strongly oppose the adoption of new EU rules forcing electronic communications service providers to massively retain their users’ traffic and location data beyond what is necessary for service and billing purposes..We believe that this obligation:
- constitutes mass surveillance, which unacceptably undermines the rights to privacy and data protection and thus, endangers the exercise of other fundamental rights enabled by them such as freedom of expression and information, freedom of assembly and association, the right to a fair trial, to health care, to social protection and social assistance, etc.;
- has been found contrary to the EU Charter of Fundamental Rights by the Court of Justice of the European Union (CJEU)
- creates inadmissible data security risks, considering that the vast amounts of personal data retained for law enforcement are vulnerable to cyberattacks (which happen on a regular basis with disastrous consequences for people affected)"