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#DataProtection

7 posts7 participants0 posts today

As a first post I would like to not highlight my own research, but the research of my colleagues, since I really love the way how this research began: With a question many people have asked.

As our working group researches on topics on #anonymization and #deidentification of medical and health data, the risk of identifying people or their membership in certain groups (e.g. having a specific diagnosis) is always present. On one of our retreats they decided to research the question:

Who are those adversaries, trying to do re-identify people in health data sets, what are their motives and what could be the harm?

The results can be found in the #OpenAccess paper: Health Data Re-Identification: Assessing Adversaries and Potential Harms

doi.org/10.3233/SHTI240626

doi.orgIOS Press Ebooks - Health Data Re-Identification: Assessing Adversaries and Potential Harms

If you know anyone in the European Union who is seriously considering buying Meta's spyglasses, please remind them that using those privacy nightmares would make them a controller according to the GDPR. They'd be responsible for ensuring full compliance with our privacy laws, which - surprise, surprise - will be impossible.

Please tell them to save themselves and everyone around them the trouble and give the money to any NGO instead.
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#privacy #DataProtection #GDPR #Meta #BanRayBan

Whenever you're building new tech, please seek privacy advice right from the start. Not as a last step before deployment.

Privacy people want to make your tech better! For you, your customers, and everybody else. But they can only do so if you make them part of your project, not just some final to-do on your checklist.
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#privacy #DataProtection #GDPR #tech

"For context, last week Facebook began showing users a prompt asking them to opt into "cloud processing," TechCrunch reported. Should you consent, this allows Facebook to grab stuff from your camera roll and upload it to Facebook's servers "on a regular basis" so it can generate recaps and "AI restylings" of your photos.

The important detail is that by opting in, Meta is asking you to agree to its AI terms, which state that, "once shared, you agree that Meta will analyze those images, including facial features, using AI." Meta would also gain the right to "retain and use" the information shared with its AI systems.

Your alarm bells should already be ringing. Any data that gets fed into an AI system runs the risk of being coughed up or reproduced in some shape or form. And asking for access to your entire camera roll so Meta's tech can "analyze" your photos is a huge and invasive escalation — it's shameless that Meta's even asking. Apparently, already using everyone's billions of Facebook and Instagram posts made since 2007 wasn't enough for Zuckerberg's tech juggernaut.

Moreover, Meta's AI terms don't make it clear if your unpublished camera roll photos it uses for "cloud processing" are safe from AI training. That's in stark contrast with the terms outlined for apps like Google Photos, the Verge noted, which explicitly state that your personal info won't be used as training data."

futurism.com/meta-sketchy-trai

Futurism · Meta Is Being Incredibly Sketchy About Training Its AI on Your Private PhotosBy Frank Landymore

"The court disregarded the privacy rights of millions of ChatGPT users without any reasonable basis to believe it would yield evidence. The court granted the order based on unsupported assertions that users who delete their data are probably copyright infringers looking to “cover their tracks.” This is simply false, and it sets a dangerous precedent for cases against generative AI developers and other companies that have vast stores of user information. Unless courts limit orders to information that is actually relevant and useful, they will needlessly violate the privacy rights of millions of users.

OpenAI is challenging this order. EFF urges the court to lift the order and correct its mistakes."

eff.org/deeplinks/2025/06/copy

Electronic Frontier Foundation · Copyright Cases Should Not Threaten Chatbot Users’ PrivacyLike users of all technologies, ChatGPT users deserve the right to delete their personal data. Nineteen U.S. States, the European Union, and a host of other countries already protect users’ right to delete. For years, OpenAI gave users the option to delete their conversations with ChatGPT, rather...

Hey Meta, don't leave us on read 👻

Over 10k people have said no to Stalker Ads, so get them off our feed!

This week ORG joined Good Law Project outside Meta's offices in a joint action with People vs Big Tech and Eko to ask why they've done nothing 🤷‍♂️

You have a legal right to say no to Stalker Ads on Meta 🫵

Use our tool to opt out (UK residents) ➡️ action.openrightsgroup.org/met

#StopStalkerAds

"We strongly oppose the adoption of new EU rules forcing electronic communications service providers to massively retain their users’ traffic and location data beyond what is necessary for service and billing purposes..We believe that this obligation:

- constitutes mass surveillance, which unacceptably undermines the rights to privacy and data protection and thus, endangers the exercise of other fundamental rights enabled by them such as freedom of expression and information, freedom of assembly and association, the right to a fair trial, to health care, to social protection and social assistance, etc.;

- has been found contrary to the EU Charter of Fundamental Rights by the Court of Justice of the European Union (CJEU)

- creates inadmissible data security risks, considering that the vast amounts of personal data retained for law enforcement are vulnerable to cyberattacks (which happen on a regular basis with disastrous consequences for people affected)"

edri.org/our-work/joint-civil-

European Digital Rights (EDRi)Impact assessment on data retention - European Digital Rights (EDRi)Last week, the EDRi network expressed shared concerns about the introduction of new rules at EU level on the retention of data.