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#MECFS

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Chronic Illness Humor Funny<p>Artist: heckifiknowcomics.com</p><p><a href="https://mastodon.social/tags/funnycomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>funnycomics</span></a> <a href="https://mastodon.social/tags/funnycomic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>funnycomic</span></a> <a href="https://mastodon.social/tags/funny" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>funny</span></a> <a href="https://mastodon.social/tags/haha" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>haha</span></a> <a href="https://mastodon.social/tags/alwaystired" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>alwaystired</span></a> <a href="https://mastodon.social/tags/sotired" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sotired</span></a> <a href="https://mastodon.social/tags/tired" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>tired</span></a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmune</span></a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicallyill</span></a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnesshumor</span></a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnessmemes</span></a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmunememes</span></a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromemes</span></a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnesslife</span></a><br><a href="https://mastodon.social/tags/fatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fatigue</span></a> <a href="https://mastodon.social/tags/fatiguememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fatiguememes</span></a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cfs</span></a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a></p>
Robot Diver<p>Pride was definitely worth the spoons, but it's laughable that i thought i'd be able to do anything today. I'm a vibrating, overtired, coiled spring.</p><p><a href="https://starlite.rodeo/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a></p>
Tom Kindlon<p>A Quiet Storm: An online art gallery showcasing the artwork of people living with severe ME/CFS</p><p><a href="https://www.aquietstorm.me/about" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">aquietstorm.me/about</span><span class="invisible"></span></a></p><p>Image is from the AMMES June 2025 e-newsletter</p><p><a href="https://disabled.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SevereME</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/SevereMECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SevereMECFS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>
Sofasophia<p>Frau Schwesterfraudoktor hat gebloggt.<br>Diesmal über <a href="https://fairmove.net/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a>, dieses so wichtige Thema. Jede Art Aufklärung und Aufmerksamkeit ist soo wichtig!</p><p><a href="https://www.schwesterfraudoktor.de/2025/06/09/das-ist-doch-psychosomatisch-%C3%BCber-me-cfs/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">schwesterfraudoktor.de/2025/06</span><span class="invisible">/09/das-ist-doch-psychosomatisch-%C3%BCber-me-cfs/</span></a></p>
Tom Kindlon<p>4/<br>“The researchers identified four broad categories of harm that clinicians’ symptom invalidation can lead to:…”</p><p><a href="https://disabled.social/tags/DoctorPatientRelationship" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DoctorPatientRelationship</span></a> <a href="https://disabled.social/tags/Gaslighting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Gaslighting</span></a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>invisibleillness</span></a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://disabled.social/tags/lupus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>lupus</span></a> <a href="https://disabled.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://disabled.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromyalgia</span></a> <a href="https://disabled.social/tags/ibs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ibs</span></a> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://disabled.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonies</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/lupus" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>lupus</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/eds" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>eds</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>fibromyalgia</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/ibs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>ibs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span></p>
Juchti<p>Hanna hat in der kommenden Woche Geburtstag, sie wird 36. Es wird der dritte Geburtstag sein, an dem sie - bettlägerig - verzweifelt versucht, für eine lebensnotwendige OP zu fundraisen. Sie braucht eine Fusions-OP. Hanna hat <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a>, <a href="https://mastodon.social/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a>, <a href="https://mastodon.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a>, <a href="https://mastodon.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> und <a href="https://mastodon.social/tags/CCI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CCI</span></a>, also eine instabile Halswirbelsäule. Sie braucht unsere Unterstützung. Bitte teilt ihren Fundraiser. Ich verlinke weitere Infos und (Zeitungs)Artikel zu Hanna im 🧵<br><a href="https://mastodon.social/tags/hopeforhanna" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hopeforhanna</span></a> </p><p>FUNDRAISER-Link: ⬇️<br><a href="https://www.gofundme.com/f/cgexg-hope-for-hanna" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">gofundme.com/f/cgexg-hope-for-</span><span class="invisible">hanna</span></a><br>1/</p>
Tom Kindlon<p>3/<br><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://disabled.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicallyill</span></a> <a href="https://disabled.social/tags/longtermillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longtermillness</span></a> <a href="https://disabled.social/tags/lupus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>lupus</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/lupus" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>lupus</span></a></span> <a href="https://disabled.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmune</span></a> <a href="https://disabled.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/eds" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>eds</span></a></span> <a href="https://disabled.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromyalgia</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>fibromyalgia</span></a></span> <a href="https://disabled.social/tags/ibs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ibs</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/ibs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>ibs</span></a></span> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span></p>
Tom Kindlon<p>🧵<br>Medscape (widely read by health professionals):</p><p>‘Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms</p><p><a href="https://www.medscape.com/viewarticle/symptom-invalidation-clinically-uncertain-diagnoses-can-2025a1000ewd" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">medscape.com/viewarticle/sympt</span><span class="invisible">om-invalidation-clinically-uncertain-diagnoses-can-2025a1000ewd</span></a><br>(may require free registration)</p><p>Thought this was good &amp; interesting. </p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span><br><a href="https://disabled.social/tags/lupus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>lupus</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/lupus" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>lupus</span></a></span> <a href="https://disabled.social/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neisvoid</span></a><br><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hiddenillness</span></a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>invisibleillness</span></a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllnesses</span></a> <br><a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonies</span></a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicallyIll</span></a><br><a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>pots</span></a></span> <a href="https://disabled.social/tags/IBS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>IBS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/ibs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>ibs</span></a></span> fibromyalgia@a.gup.pe<br><a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibromyalgia</span></a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibro</span></a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FMS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <br>1/</p>
Irish ME/CFS Association<p>‪2/‬</p><p>‪Subsequent to making this image, one of the doctors we sent the recording to sent us this: "Thanks you very much for forwarding on that lecture on ME. Found it very interesting."‬</p><p>‪<a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/MedEd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MedEd</span></a>‬ <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicE</span></a><br><a href="https://mastodon.ie/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Chronic Illness Humor Funny<p>Murderer: Everyone lay down!<br>Everyone Else: *screaming*<br>Me: *fatigued* hell yeh.</p><p><a href="https://mastodon.social/tags/funny" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>funny</span></a> <a href="https://mastodon.social/tags/haha" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>haha</span></a> <a href="https://mastodon.social/tags/tired" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>tired</span></a> <a href="https://mastodon.social/tags/sotired" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sotired</span></a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnesshumor</span></a> <a href="https://mastodon.social/tags/chronicillnessfunny" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnessfunny</span></a> <a href="https://mastodon.social/tags/fatiguememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fatiguememes</span></a> <a href="https://mastodon.social/tags/fatiguehumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fatiguehumor</span></a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cfs</span></a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://mastodon.social/tags/chronicfatiguesyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicfatiguesyndrome</span></a></p>
Tom Kindlon<p>I haven't read the book but the blog post is interesting enough itself</p><p><a href="https://meglobalchronicle.wordpress.com/2023/12/23/the-words-that-saved-me/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">meglobalchronicle.wordpress.co</span><span class="invisible">m/2023/12/23/the-words-that-saved-me/</span></a></p><p>"It is about my experiences and the emotional journey of finding hope and courage whilst living with severe chronic illness."</p><p>Hashtags:<br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>disability</span></a></span><br><a href="https://disabled.social/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neisvoid</span></a><br><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <br><a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chroniclife</span></a> <br><a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <br><a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonielife</span></a> <br><a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hiddenillness</span></a> <br><a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>invisibleillness</span></a> <br><a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllnesses</span></a> <br><a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonies</span></a><br><a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonie</span></a><br><a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicallyIll</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>
Irish ME/CFS Association<p>4/<br>Mary's 21-minute interview is now available here:<br><a href="https://www.mixcloud.com/925PhoenixFM/disability-matters-05-06-25-1600-1700/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">mixcloud.com/925PhoenixFM/disa</span><span class="invisible">bility-matters-05-06-25-1600-1700/</span></a></p><p>32:00-53:20.</p><p>Thanks very much to Mary for doing it.</p><p><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>disability</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span></p>
Juchti<p>Im Film "Chronisch krank, chronisch ignoriert" sagt Mike van Elzakker auf die Frage, was <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> ist, folgendes:</p><p>"Many different (!) forms of illness have grouped under a label. The label is a mystery. And for many doctors that's a licence to give up."</p><p>1/</p>
Tom Kindlon<p>Trial By Error: Canadian GET/CBT Campaigners Publish Propaganda Cosplaying as Research on Twitter Trends</p><p><a href="https://virology.ws/2025/06/02/trial-by-error-propaganda-cosplaying-as-twitter-research-from-canadian-get-cbt-campaigners/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">virology.ws/2025/06/02/trial-b</span><span class="invisible">y-error-propaganda-cosplaying-as-twitter-research-from-canadian-get-cbt-campaigners/</span></a></p><p>It's great to have David Tuller to critique very questionable papers like this one</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>What Not to Say to People With Complex Chronic Illness</p><p><a href="https://www.medscape.com/viewarticle/what-not-say-people-complex-chronic-illness-2025a10006ft" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">medscape.com/viewarticle/what-</span><span class="invisible">not-say-people-complex-chronic-illness-2025a10006ft</span></a></p><p>Image is a screenshot from June 2025 AMMES e-newsletter</p><p>Hashtags:<br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span> <a href="https://disabled.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dysautonomia</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>dysautonomia</span></a></span> <br><a href="https://disabled.social/tags/PosturalOrthostaticTachycardiaSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PosturalOrthostaticTachycardiaSyndrome</span></a> <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>pots</span></a></span> <a href="https://disabled.social/tags/OI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>OI</span></a> <a href="https://disabled.social/tags/OrthostaticIntolerance" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>OrthostaticIntolerance</span></a></p>
Dr. ChronicAlly M.D.<p>Ich kenne wirklich schlimme Fälle von ME/CFS und bin täglich mit den unterschiedlichsten Stadien konfrontiert - doch dieser Podcast hat mich gerade wirklich zum Weinen gebracht! Hört euch das an und teilt es. Diese Folge hat es weit über unsere Bubble hinaus geschafft! <a class="hashtag" rel="nofollow noopener noreferrer" href="https://bsky.app/search?q=%23MECFS" target="_blank">#MECFS</a> Danke, Lottie!<br><br><a href="https://www.plothousepodcast.de/episodes/folge16" rel="nofollow noopener noreferrer" target="_blank">#16 Lebendig begraben - (K)ein...</a></p>
Garth Coghlan<p>Seventeen years today with <a href="https://aus.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a>. And feeling it too. Fuuuuuuuuuuuck ...</p>
WokStation<p><span class="h-card" translate="no"><a href="https://cupoftea.social/@MakersHour" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>MakersHour@cupoftea.social</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/makershour" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>makershour@a.gup.pe</span></a></span> "why you grumpy, $wok?" says oh. coz <a href="https://universeodon.com/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> crash time, says me.</p>
Juchti<p>Please share this widely! ‼️ ⬇️🧵</p><p>The film "Chronically Ignored" will be available online for the first time internationally, starting Friday, June 6th, at 9 a.m (German Time). The link will be this one here: <br><a href="https://vimeo.com/ondemand/chronicallyignored" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">vimeo.com/ondemand/chronically</span><span class="invisible">ignored</span></a></p><p>"Chronically Ignored" is an investigative documentary about a dark chapter in the history of medicine.<br>1/</p><p><a href="https://mastodon.social/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ME</span></a> <a href="https://mastodon.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.social/tags/ChronicallyIgnored" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicallyIgnored</span></a> <a href="https://mastodon.social/tags/greatestMEdicalscandal" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>greatestMEdicalscandal</span></a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://mastodon.social/tags/FQAD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FQAD</span></a> <a href="https://mastodon.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://mastodon.social/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a> <a href="https://mastodon.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <a href="https://mastodon.social/tags/CCI" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CCI</span></a> <a href="https://mastodon.social/tags/SFN" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SFN</span></a> <a href="https://mastodon.social/tags/MEawareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEawareness</span></a></p>
Tom Kindlon<p>How pandemics reshape our brain: Common links and targets between long-haul COVID-19, <a href="https://disabled.social/tags/myalgicencephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>myalgicencephalomyelitis</span></a> / <a href="https://disabled.social/tags/chronicfatiguesyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicfatiguesyndrome</span></a> (ME/CFS), oxidative stress, and neurodegeneration</p><p>Free:<br><a href="https://onlinelibrary.wiley.com/doi/10.1002/nep3.70007" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">onlinelibrary.wiley.com/doi/10</span><span class="invisible">.1002/nep3.70007</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDBrain</span></a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NeuroPASC</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/covid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>covid19</span></a></span> <a href="https://disabled.social/tags/Coronavirus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Coronavirus</span></a><br><a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://disabled.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://disabled.social/tags/COVID_19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID_19</span></a> <a href="https://disabled.social/tags/COVID%E3%83%BC19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDー19</span></a> <a href="https://disabled.social/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SARSCoV2</span></a> <a href="https://disabled.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/auscovid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>auscovid19</span></a></span> <a href="https://disabled.social/tags/auscovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>auscovid19</span></a><br> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>