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#CFS

8 posts7 participants1 post today
*
Ms. Que Banh

Ask #BCgovernment #HealthMinister #JosieOsborne : Protect Access to Care for #LongCOVID, ME #CFS & #Fibromyalgia Patients
Thousands of #BritishColumbians living with Long COVID, #MyalgicEncephalomyelitis (ME/CFS) & Fibromyalgia rely on the BC Centre for Long COVID, ME/CFS and Fibromyalgia (BC-CLMF) for care. Many are housebound or live in rural areas. This clinic—accessible only through virtual care—is their only connection to #medical support, education, and physician-guided treatment.

But due to changes to BC’s #MedicalServices Plan coming September 1, 2025, this clinic is at risk of shutting down. If that happens, patients will lose access to essential care. #ERs and #GPs will be further overwhelmed, and there are no viable alternatives. Other programs are too short-term, overbooked, or exclude those with ME/CFS or Fibromyalgia. This clinic is cost-effective, scalable, and already working.

We urge Minister Josie Osborne to act now and secure #sustainable #funding for the BC-CLMF. We don’t need a new program—we need to protect the only system that’s helping. Please don’t abandon BC’s most vulnerable patients. Sign and share to help save the #BCCLMF.

change.org/p/josie-osborne-pro

Change.orgSign the PetitionJosie Osborne: Protect Access to Care for Long COVID, ME/CFS, and Fibromyalgia Patients
#BCpoli#PublicHealth#Healthcare
Replied to Emeritus Prof Christopher May
Tiggy

@ChrisMayLA6

My neurologist wrote to my GP 'suggesting' they investigate if I have CFS in addition to the fibromyalgia and non diabetic peripheral neuropathy I'd been diagnosed with.
(He actually diagnosed 4 conditions by taking a holistic approach but CFS was outside his area, so just a suggestion.)
They did nothing.
So I sent my sample to this study.

#CFS
Emeritus Prof Christopher May

It now seems that people *do* have a genetic disposition towards chronic fatigue syndrome & ME... not caused by but can 'tip the balance' towards experiencing CFS/ME.

Whether this new research will help sufferers avoid both disbelief & medical neglect, and allow CFS/ME to be taken more seriously & recognised more easily.

And then we might also wonder whether there are any links with Long Covid?

#CFS #health

theguardian.com/society/2025/a

The Guardian · Scientists find link between genes and ME/chronic fatigue syndromeBy Ian Sample
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